A Down syndrome timeline to serve as a resource to parents at all stages of their child’s life

To read on Down Syndrome Indiana website:

Ds Timeline

timeline

Down Syndrome Indiana has developed this timeline to serve as a resource to parents at all stages of their child’s life.   If you have a suggestion for an item that should appear on the Timeline, please contact us at  info@dsindiana.org.

Click HERE to view the Timeline.

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Down Syndrome Timeline

0—3 years

Initial Diagnosis & Early Intervention
• Receive New Parent Packet from Down Syndrome Indiana
317-925-7617 or visit http://www.dsindiana.org/requestaparentpacket.php
• Contact First Steps to set up an evaluation
317-257-2229 or visit http://www.cibaby.org/2011%20web%20updates/referral.htm
• Apply for the Medicaid Waiver (be sure to keep a copy for your records):
http://www.dsindiana.org/medicaid_waiver.php
• Review Healthcare Guidelines and make sure your pediatrician is familiar with the guidelines:
http://www.ndss.org/wp-content/uploads/2017/10/
Health_Care_Information_for_Families_of_Children_with_Down_Syndrome-1.pdf
• Make appointment at Down Syndrome Clinic (Riley or St. Vincent)
http://www.dsindiana.org/ds-clinics.php
(…)

Down Syndrome Timeline

Elementary School

Pre-school
• Attend trainings on Inclusive Education
• Attend trainings on IEP development and parental rights
IN*SOURCE http://insource.org/
Wrightslaw http://wrightslaw.com/
• Continue to attend educational and training opportunities
• Develop behavior management strategies if needed
(…)

Down Syndrome Timeline

Elementary School

Kindergarten—6th grade
• Attend yearly IEP meetings
• Request an Advocate attend IEP meeting if necessary
IN*SOURCE http://insource.org/
• Know your rights according to current Federal and State Education Law
IN*SOURCE http://insource.org/About Special Kids (ASK) http://www.aboutspecialkids.org/
• Access appropriate Medicaid Waiver Services
• Educate school personnel and students about Down syndrome
http://www.dsindiana.org/educators.php
Get to Know Me Lesson Plans (NDSS) http://www.ndss.org/Resources/Publications/Printed-Materials/Get-
To-Know-Me-Poster–Lesson-Plan-Series/

(…)

Down Syndrome Timeline

Middle school

• Begin to consider Transition Planning
Transition Planning handbook (Disability Rights) www.in.gov/idr/files/0482-1112_TransitBook_01-15_Pages_Web.pdf
Transition to Adult Life (INSOURCE)
• Consider Post-secondary Educational Opportunities
http://thinkcollegeindiana.org
• Attend yearly IEP meetings & involve your child
(…)

Down Syndrome Timeline

High school

• Continue Transition Planning
Transition Planning handbook (Disability Rights)
www.in.gov/idr/files/0482-1112_TransitBook_01-15_Pages_Web.pdf
Transition to Adult Life (INSOURCE)
• Consider Post-secondary Educational Opportunities
http://thinkcollegeindiana.org
• Attend yearly IEP meetings with advocate when needed & involve your child
• Know your rights according to current Federal and State Education Law
IN*SOURCE http://insource.org/
• Attend Transition Fairs
(…)

Down Syndrome Timeline

Adult living

• Continue to follow yearly Ds Healthcare guidelines
http://www.eskenazihealth.edu/our-services/center-for-youth-and-adults-with-conditions-of-childhood
• Promote independence at home through chores, routines, and other responsibilities
• Continue to explore housing options
• Continue to explore employment and volunteer options
• Learn more about Special Olympics Indiana
http://soindiana.org/

(…)

Read the complete Timeline here.

 

 

 

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