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Call Me The Dream Weaver
Posted on March 18, 2016 by themightywillow
March 21st used to be a downer of a day for my son. It’s the day after his birthday. The party is over, the cake is half eaten and the presents are all gone. What’s to celebrate? Since the arrival of Willow, plenty! That’s because March 21st is World Down Syndrome Day!
Down syndrome occurs when someone receives 3 copies of the 21st chromosome, instead of 2. Now you understand why World Down Syndrome Day falls on 3/21. While the day’s primary intention is to spread awareness, it’s also a celebration. After all, this girl deserves to be celebrated.
If you took away Willow’s extra chromosome, Willow would not be Willow. But, by no means is Down syndrome her identity. It’s just a part of her, like her hair color and eye color.
Willow’s 3 chromosomes affect her muscle tone and learning style, but I assure you, she will walk and she will go to school. Willow is just like our other two children. Why wouldn’t she be?
Sure, Down syndrome does have it’s challenges, most of them health related, but what person doesn’t face challenges in life? Far too many people view Down syndrome as a negative. I’m here to tell you, Willow is nothing but a positive! According to Merriam-Webster, a negative is something harmful or bad. As an adjective, negative means not hopeful or optimistic. It also means not wanted. It kills me to think of my daughter as unwanted. Not only do I want Willow, I want for her. I desire, I dream for her.
In honor of World Down Syndrome Day, I’m going to share some of my dreams for Willow. 21 of them, to be exact.
#1 I dream of the day Willow walks. She’s so close. So, so close. After 2 1/2 years of hard work, just imagine how it’ll feel to her. I imagine it’ll feel a bit like flying.
#2 I dream of the day Willow starts preschool. I hate the idea of losing my baby, but am giddy at the thought of what she’ll experience and the friends she’ll make.
#3 I dream of the day Willow learns to ride a bike. She loves watching her big sister and big brother zoom down the sidewalk. While the tricycle her physical therapist lets her use is fine for now, Willow’s got her eyes on a big girl bike. Let’s hope this doesn’t morph into a love of motorcycles when she’s older. My heart can’t take that.
#4 I dream of the day Willow will have her first dance recital. The girl has got some moves, and she’s only 2 1/2. I’d like to see her do ballet like her sister, but I’m guessing Hip Hop will be her dance of choice.
#5 I dream of the day Willow tells me the name of her best friend. Man, that person will be lucky.
#6 I dream of the day Willow sings with the worship team at church. Right now, she worships them. They’re on her stage!
#7 I dream of the day Willow swims on her own. She loves water, just like her siblings. Heck, I might even buy a backyard pool just to watch em’ all enjoy something together.