New growth charts for kids with Down syndrome

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Kids with Down Syndrome Are Growing Up Healthier

January 5, 2016

by Amy Julia Becker


New growth charts have been released for kids with Down syndrome, and they show improvements in many areas.

So when I heard that the Children’s Hospital of Philadelphia (CHOP) was recruiting participants in order to update the growth charts for children with Down syndrome, I gladly signed up Penny to participate. We reported to CHOP clinics for multiple measurements over time, and just a few weeks ago researchers released the results of this multi-year study.

Because Down syndrome has been recognized by doctors since the 1800s, researchers have been able to gather information about children and adults with Down syndrome as a group for many years. This information has sometimes led to tragic conclusions—whether in the form of doctors who recommended institutionalization in the past or doctors who exert pressure for women to terminate pregnancies with a prenatal diagnosis of Down syndrome in the present day—but this information has also helped change the health and well-being of people with Down syndrome. The life expectancy of a child with Down syndrome, for instance, has risen from 35 years in 1982 to 53 years in 2007, due to both social and medical advances. Increased life expectancy and better overall health led doctors to wonder whether children with Down syndrome were also growing differently than they had in the past. They created new growth charts not only as a tool for pediatricians but also in order to study any changes in the growth rates of children with Down syndrome.

More than 600 children participated in the study, and the researchers have highlighted a few important findings. One, young children (younger than 3 years old) with Down syndrome showed “marked improvements in weight” compared with older charts. In the past, due to feeding difficulties and other health concerns, many young children with Down syndrome were malnourished or failed to thrive. These results suggest that parents and doctors have been able to overcome obstacles to good early nutrition for babies and toddlers with Down syndrome, which points to a healthier future for those children. The second finding researchers pointed to was that young men with Down syndrome are taller than they were in the past, although researchers don’t know exactly why this is the case. Third, although the United States as a whole has seen a marked increase in childhood obesity over the past 20 years, these charts do not reflect a corresponding rise in the rate of obesity. Children with Down syndrome are more susceptible to obesity than children in the general population due to lower muscle tone and thyroid conditions, so these findings may reflect improved health among children with Down syndrome. (…)

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