To read on The Guardian website:
Note: In the UK, the term of ‘Learning disability’ is used instead of ‘Intellectual disability’.
Every day I battle to get proper care for people with learning disabilities
A day in the life of …
I get up at about 5.30am. When I’m ready, I get the children up and dressed in time to drop them at the childminder’s house by 7am.
I’ve worked at FitzRoy as a team leader, supporting people with learning disabilities, for 11 years and I love my work. Before this job I was a personal assistant but it felt wrong because I’m very much a people person. I earn less now than when I was a PA, but the job satisfaction is so much greater and now I get to help people.
The day when one of the residents got a wheelchair that fitted properly after six months of us fighting for it was a wonderful day, and there are many other examples I could give. A lot of my work means refusing to take no for an answer. I’ve learned that if you persist in getting past reception to speak to people who can make decisions, you’re more likely to be listened to.
I get to work at about 7.10am, giving me a bit of time to go through my emails and make sure I’ve caught up with everything before I begin the day. The next couple of hours are spent helping the 19 residents to get up, assisting them with personal care, bathing and taking their medication.
When everyone is ready, the fun begins and we have a range of activities planned each day such as cooking, exercise, music, dance, quizzes, support on the computers and board games. We also spend time managing quite a high range of healthcare needs. Just last month we had 57 healthcare appointments with doctors and hospitals. Two members of staff might need to attend with each resident, and as a team we manage cover as best we can.
My biggest challenge is without a doubt the countless times I hear “no” from local authority departments, and it always seems to be due to a lack of funds. One of our residents is suffering from bulimia, but his GP washed his hands of it and told me: “You can’t help everyone”. We finally had a breakthrough when his social worker raised our concerns with a psychiatrist, and he’s now in line to receive respite care. If he had been a 14-year-old girl he would have been prioritised, but because he’s a 60-year-old man who has had a stroke and has mental health issues, he didn’t seem to be anyone’s priority. (…) Read complete article.
Thanks @ to have drawn my attention on this article.